Tuesday, August 29, 2006 update

Tuesday 8/29
Where do I start with an update.   I've been
havingproblems with my Netscape email so I
haven't been ableto write an update, which has
been frustrating. I'm using my yahoo email
address instead to write an update.  Kenn has
been having quiet days with no neurostorming
or vomiting since the 17 of August, when he was
put on a new medicine for storming.  On Monday
afternoon I went with Kenn to Dr. Ward's office,
he was given botox in his right arm and shoulder
and his leftshoulder.  He also had his pump dosage
turned up.  I was sitting on Kenn's left behind his
chair in the examining room before the doctor came
in.  I was talking to him in his ear about some
intimate timeswe've had in the past.  He knew what
I was saying.  He was trying to turn his head more
to the left to seeme.  At one point he even stiffened
up which he hadn't been doing.  The doctor remarked on
how alert hewas.   
On Friday morning when I visited him I took him to
the dining room for bingo.  He sat looking around
some then closed his eyes.  When I started massaging
his neck and shoulders I was told he opened his eyes.
He enjoyed the massage.  I talked to the one who was
doing the bingo and she said she is trying to get him
out of his room more and joining the activity.  I told
her thank-you.  On Sunday he was alert part of the time
and I also gave him a haircut and trimmed his
mustache. 
At the house Shawn had to put in a sump pump last
Wednesday because it rained so much.  It rained into
the basement some.  Shawn replaced the old landings on the
basement steps.  He also put in a new north window so
there's alittle more light coming in.  Shawn could use
some help if you want to help him in the basement.  
His number is 608-358-1717.   I'm hanging in there but
get frustrated and overwhelmed with things so easy.  I'm
finding it hard to follow through on things.  I also
get distracted easily.    Dance is going good.  I met
another lady at dance class who lost her husband this
past December.  Someone told me it really took guts for me
to sign up for dance class.  I find I try finding an
excuse not to go even though I like the class.   I
find it so hard to be around people and be social. 
On Wednesday the 30th of August in aerobic class, a
professional is coming in to make a video of the
class, which is something else I've wanted to do for
along time.    My mind is having a problem sticking to
one thought because so many thoughts are going on. 
Carol